Serious question for the old guys here

smokeysevin

one man with a couch
Location
Houston
It is probably unrelated but I figured I would ask, do you have a carbon monoxide alarm in the house? I have heard some seriously scary things about memory lapses and weird symptoms from low level CO exposure.

Sean
 

Quinc

Buy a Superjet
Location
California
I started having problems in my 50s
Diabetes, sleep apnea and then Parkinsons
diagnosed 4/19.
Coming up on 1 year of disability at 56
Go see doctor, especially a neurologist.
My GP denied I had Parkinson's for several years before I made him refer me to a neurologist.
Delayed treatment is not ideal
I don't know why but all my doctors and the neurologist stayed away from the P word until
I was shaking on the left and right sides.

What other treatments are out there besides Carbidopa-Levodopa?

Bill M.

Have either of you tried keto?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4912670/

https://pubmed.ncbi.nlm.nih.gov/30650523/


https://pubmed.ncbi.nlm.nih.gov/30098269/
Background: Preliminary evidence suggests that diet manipulation may influence motor and nonmotor symptoms in PD, but conflict exists regarding the ideal fat to carbohydrate ratio.

Objectives: We designed a pilot randomized, controlled trial to compare the plausibility, safety, and efficacy of a low-fat, high-carbohydrate diet versus a ketogenic diet in a hospital clinic of PD patients.

Methods: We developed a protocol to support PD patients in a diet study and randomly assigned patients to a low-fat or ketogenic diet. Primary outcomes were within- and between-group changes in MDS-UPDRS Parts 1 to 4 over 8 weeks.

Results: We randomized 47 patients, of which 44 commenced the diets and 38 completed the study (86% completion rate for patients commencing the diets). The ketogenic diet group maintained physiological ketosis. Both groups significantly decreased their MDS-UPDRS scores, but the ketogenic group decreased more in Part 1 (-4.58 ± 2.17 points, representing a 41% improvement in baseline Part 1 scores) compared to the low-fat group (-0.99 ± 3.63 points, representing an 11% improvement) (P < 0.001), with the largest between-group decreases observed for urinary problems, pain and other sensations, fatigue, daytime sleepiness, and cognitive impairment. There were no between-group differences in the magnitude of decrease for Parts 2 to 4. The most common adverse effects were excessive hunger in the low-fat group and intermittent exacerbation of the PD tremor and/or rigidity in the ketogenic group.

Conclusions: It is plausible and safe for PD patients to maintain a low-fat or ketogenic diet for 8 weeks. Both diet groups significantly improved in motor and nonmotor symptoms; however, the ketogenic group showed greater improvements in nonmotor symptoms. © 2018 The Authors. Movement Disorders published by Wiley Periodicals, Inc. on behalf of International Parkinson and Movement Disorder Society.
 

tor*p*do

Squarenose FTW
Site Supporter
Location
NW NC
I don't know why but all my doctors and the neurologist stayed away from the P word until
I was shaking on the left and right sides.



What other treatments are out there besides Carbidopa-Levodopa?


Bill M.

I take Mirapex along with C/L-dopa
By delaying treatment I meant I was so bad off when I finally got to the neurologist, he thought I'd had a series of strokes or a brain tumor.
With meds I have less pain, less falls and better quality of life. Why delay that?
 

tor*p*do

Squarenose FTW
Site Supporter
Location
NW NC
i haven't tried keto, will ask my dr if she has heard pf this and if there are benefits and risks
 
All good advice and could probably help but the biggest thing first is see your doctor and see if there is really something more serious going on before you start with self medication, supplements or Keto as they could have negative impacts if it is actually something more serious. If you check out ok then by all means give any or all of them a try.
 
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